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Baby With Rare Muscular Disease Turns One

6:54 PM, Feb 9, 2013   |    comments
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Greensboro, NC -- Logan Forbis has already beaten the odds.

Wednesday, he turned one year old, and on Saturday, his parents threw him a huge birthday party.

Logan was born with a rare neuromuscular disease called Myotubular Myopathy. It's so rare that doctors don't really have a prognosis, and they were surprised when he lived until he was four months old. 

READ: Baby's Fight Puts Life Into Perspective

Now a one-year-old, Logan needs a machine to breathe and is fed through a feeding tube but his parents say he's doing great. He can now move his hands and is starting to make noises like he's trying to talk.

"He's got such a personality to him and he's just a blessing. He shows us something and teaches us something every day so he's amazing," said Logan's mom, Kathleen Forbis.

"We just take the little things and one step at a time, for him and he's steadily improving, and that's all we can ask," said Brian Forbis, Logan's dad. 

"I'm not going to say he can't do anything because he's already proven the odds, and you know, there is no telling what he is capable of doing," said Kathleen.

Logan's parents say they hope to begin speech therapy soon, and his mom says she believes one day he might even walk. That's because she hopes doctors will soon find a treatment for this disease.

To learn more about that research, visit here. 

WFMY News 2

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