Greensboro, NC -- On the outside, he looks like any other 3-year-old but on the inside he's very fragile.
"We live each day by each moment being a game changer," said Leatrice Priest, Mother.
Uriah Priest is battling is battling Osteogenesis Imperfecta (OI). He was diagnosed with the rare bone disorder, when he was only 6 weeks old.
"So, doctor told us that because they weren't sure how it would come out, they would recommend termination," said Priest.
According to the Osteogenesis Imperfecta Foundation, OI is a genetic disorder characterized by bones that break easily, often from little or no apparent cause.
A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime.
For the last year and a half, the Priest family travels 9 hours away to the A.I. DuPont Children's Hospital in Wilmington, DE. In Wilmington, Uriah receives treatments which helps protect his bones from fractures and his body from pain.
The 3-year-old could have a turning point, that could give him a step in the right direction with his disease. Uriah will have surgery on April 11 to have metal telescoping rods placed in both of his femurs. This surgery could possible help him walk on his own for the first time.
According to OI experts, the number of people affected with OI in the United States is unknown, the best estimate suggests a minimum of 20,000 and possibly as many as 50,000.
Uriah turned 3 years old on Tuesday, February 26, 2013. The Priest family will head to Delaware on April 11th for surgery. They will have to travel back a couple time to make sure there's no complications.
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For more information on Osteogenesis imperfecta, here's some Fast Facts.