GREENSBORO, NC -- What a journey it's been. In the past 2 years, Logan Forbis has spent more time in the hospital, than most of us will in our whole lives.
But the little guy continually bounces back. Logan was born with a rare neuromuscular disease. It's called X-linked Myotubular Myopathy (MTM).
MTM affects only males, and affects all muscles in the body, including the muscles that help you breathe. Most boys affected with MTM do not make it past their 10th birthday. In the world, there are only 300 known cases of MTM.
Logan requires around the clock care. But his parents, Brian and Kathleen Forbis, say he has an amazing personality, he's very intelligent, and loves life.
"MTM has changed our life, but it's been for the best," Forbis said.
"The Logan Forbis Benefit: Fighting for a cure for Myotubular Myopathy" is Saturday, May 10 from 1 to 6 PM.
There will be live music, a raffle, a silent auction and lots of food and fun for the family.
It will be held behind Alamance Presbyterian Church at 4000 Presbyterian Road in Greensboro.
All the proceeds will benefit Logan and the Joshua Frase Foundation for Research.