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‘I masked my pain underneath my jeans,’ What every woman should know about this rare genital skin disease that could save your life

It’s a relentless disease. It’s torture to the body. It’s absolute torment.

Carrie Hodgin (WFMY News 2 Digital)

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Published: 5:57 AM EST March 1, 2022
Updated: 4:48 PM EST March 4, 2022

I am a rare disease warrior. For 19 years, I kept it a secret. I was ashamed, in chronic pain, and every bit alone.

It’s a relentless disease. It’s torture to the body. It’s absolute torment. I lived in silence masking my pain underneath my jeans. I didn’t have the courage.  I didn’t have a voice in the fight.